Since 051005001 started the Ketogenic diet in 2011 (KetoVOLVE) we’ve weaned him of all of his epileptic medications. His fits have reduced drastically. We have tried to take him off the KetoVOLVE due to the medical aid not covering this - but placed him back on after two days as his fits increased and as he was having Grand mal seizures. KetoVOLVE is the best treatment that we could have ever started 051005001 on and have had only positive results.
1005001 is exclusively fed on KetoVOLVE through his Mickey. Without it, we’re not sure if he would still be alive. We have not experienced any real side-effects since we started the diet in 2008. We continued the therapy even after the health insurance had stopped paying. It is the only thing that works for us. His seizures now range between 20 – 30 per day, which is, for us, a massive improvement. We have generated a graph of his improvement over the first 3 weeks of his being on KetoVOLVE™
We tried a total of 12 medicines to treat 1304001’s epilepsy. The cocktail of medications almost caused him to stop breathing, at the age of 6 months. After 9 months, we started him on KetoVOLVE and he responded very well. He has since then stopped using KetoVOLVE but still uses the Ketogenic diet as part of his epilepsy management therapy. He is still slightly delayed in his development but he is doing very well and we are very grateful to God for bringing our son back to us. 1304001 is now mostly under control.